Friday morning I awoke once again with the birds, Ezra and I headed over to the hospital to have another PICC line put in. I was really upset to find out that because he was out patient he wouldn’t be receiving any sedation, not even conscious sedation (versed).
We waited for an hour while some numbing cream sat on his arm. Then I had to take him back to what looked like an operating room, and leave him there, with a bunch of strangers. I felt like I had been punched in the stomach. Every other time he has been taken away from me he has at least been on some sort of mild sedation. I just kept thinking about how scary it must have been for him. I really hope he forgives me for all of this some day.
They were able to place the PICC line in and we headed home.
Later in the afternoon we went back to clinic to receive chemo. After another hour wait, they finally just decided to give Ezra his chemo, we were waiting for a seat in the infusion room, and a seat never opened up.
Ezra started Interim Maintenance on Friday. It is 56 days long and will consist of the following.
Vincristine, & Methotrexate (chemo) through his IV on days 1, 11, 21, 31, & 41. Then another lumbar puncture with Intrathecal Methotrexate on day 31.
So we at least get a break from lumbar punctures. He also is only taking one medicine orally and only 3 times a week. Which I know he is grateful for.
Side affects for this phase are mostly lowered ANC, mouth sores, and nausea. He is too young to receive the anti-nausea medicine they typically give to older kids. Something about it causing seizures in babies. So lets hope he doesn’t get nauseous!