Tuesday, September 15, 2009

Delayed Intensification…dun, dun, dun

ezraswing1

We go in to clinic for labs on Thursday to make sure Ezra counts are good enough to start the next phase, called Delayed Intensification. If his counts are good he is scheduled to start on the 21st. This phase is the hardest, most intense phases of all them during his whole treatment. He will receive more drugs, larger amounts, and new drugs as well. It is during this phase that many kids need blood and platelet transfusions. His counts are also expected to drop a lot during this time, so infections are common, along with hospital stays.

We are preparing ourselves for a hospital stay or 2, so that if it doesn’t happen we are pleasantly surprised. We are taking the boys to the Florida Aquarium this week, for one last bout of fun. In case its awhile before we can go out in public. The phase is only 56 days, but many times there are delays when their counts drop too low, so it could be much longer.

Its been a nice break from Leukemia Land these last 3 weeks, we have had maybe one appointment, and Ezra has been great, despite his ear infection.

So for those of you (Mom, and Aunt B) that want the nitty gritty of the medicines he will be receiving here it goes:

Dexamethasone : (steroids) will be given orally days 1-7, and 15-21 (I better stock up on “IZZA”)

Vincristine : IV push on days 1, 8, and 15

Doxorubicin : (this one is new) IV over 15 min on days 1, 8, and 15

PEG-asparaginase : shots to the leg muscles either on day 4,5, or 6.

Cyclophosphamide : IV over 60 min on day 29 (I think this one is new too???)

Thioguanine : Orally days 29-42 ( I don’t recognize this one either)

Cytarabine: IV push on days 29-32 and 36-39 ( I don’t recognize this one either)

Intrathecal Methotrexate : spinal tap days 1 and 29

Phew, that is whole lot Ezra has going on over the next 56 days. Please keep us in your thoughts, I know this phase will not be easy on any of us. Once we are through the 56 days though we move into LTM (long term maintenance) for the duration of his treatment. We just have to get through this phase, and the worse of the chemo will be behind us.

12 comments:

  1. I will pray for him to fly through this and continue on his road to recovery. God Bless.

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  2. I will pray like always. I hope all goes well. HUGS@

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  3. Many many prayers for Ezra that all goes well! And for you to be strong through all of this! You've been amazing so far as has Ezra! Still wearing my blue for that sweet boy. A million hugs!!!!

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  4. Would donating platelets help him?
    Hope this phase is not too hard on him & the family.

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  5. God Bless this precious Angel. I will be praying for him, you and his family.

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  6. My God. There is so much more that goes on that we don't know about! I will most definitely be praying for Ezra and your family! Sending you and Ezra love, positive energy, and STRENGTH to get through these 56 days! He can do it!!!

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  7. As with every challenge in life, take it one step, one day (heck, even one hour)at a time; appreciate the good days, the lighter moments, the easy steps, and always, always, always, know that you are loved and given prayer covering by me and my crew.

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  8. Praying so hard for little Ezra. Many hugs for him.

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  9. Thats a whole lotta meds for such a little guy! Praying for Ezra and your family.

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  10. I am so glad you posted what exactly that was. I saw it on your twitter and wondered! Praying for you guys!

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  11. Getting the right care for my kids was stressful. Then I found a children dentist that I could trust. They are understanding and caring.

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