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I have been awful at updating this blog! My apologies, I guess it is a good thing though since it means there isn’t much to tell.
Ezra went to clinic today, he is now on his 3rd cycle of maintenance. Ezra has had a pretty high ANC the last couple of times we went in. At his last appt. there was talk of increasing his chemo to 125% dosage.
But of course that all changed today when we got back his counts and his ANC was 237! He was at 1700 last Monday, just to give you an idea of how quickly it can change.
He received his chemo today in clinic and will still get his spinal tap tomorrow, but is off of his oral chemo until his counts go back up to at least 750. When he resumes his chemo he only be getting 50% dosage so they can make sure his counts don’t crash again. Its been quite sometime since he has been netropenic!
He has been handling his chemo like a champ, has little to no side effects from it so far.
In other news, sweet boy turned 3 over the weekend. We had an awesome party with friends and family.
Here is a video I made for Ezra for his birthday, I forgot to post it here too.
Happy Birthday, Ezra!!!
ReplyDeleteGlad his counts were lower again!
9 days until my 1/2 marathon, I will be thinking of Ezra all the way!
Happy Birthday Sweet Ezra! What a beautiful video...he is my hero! Its an amazing thing to see how strong and brave he is!
ReplyDeleteThank you for posting that beautiful video....Happy Birthday to your little man Ezra.
ReplyDeleteI hope the count picks up .....quickly. XX
Ezra is a darling boy. He is lucky to have such a kind, supportive mommy. I have a 3-year-old boy. I can't imagine what you're going through. I am sending all my loving and positive energies your and Ezra's way. ♥
ReplyDeleteEzra is such a cute and strong little boy! my thoughts go for him, you and all your family. Stay strong!
ReplyDeletewaves from Paris, fr
x Veee
Hi Ezra
ReplyDeleteMy name is Jenna, you are a brave, courageous fighter and an inspiration. You are a hero.
I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
I wrote this poem
Each of us are Special
Each of us different,
No one is the same
Each of are us are unique in our own way,
Those of us who have challenges, we smile through our day.
It doesen't matter what other's say
we are special anyway.
What is forty feet and sings? the school chior
http://www.miraclechamp.webs.com