Ezra was finally released from the hospital today. He really does so much better at home, but I have to think any child would. He was busy playing, smiling, running, and being
very somewhat difficult.
He looks a little paler than usual, which is hard to believe, I know. He will be treated another ten days on antibiotics for the ear infection. They have also changed his oral chemo dosing. He was on 100% chemo dosing, but they lowered it to 50%, they don’t want his counts to bottom out again, they will check his counts soon and hopefully slowly increase the chemo back up to 100%. His oncology team said it is typical for kids to bottom out in maintenance when he did. His ear infection didn’t help his counts either.
It all still seems a little surreal at times, like when I read back what I just wrote and words pop out at me like oncology team, counts, and chemo. It all became a part of our reality so quickly. I am not going to lie, our lives had started to seem some what normal lately. This last hospital visit very rudely reminded me how far from normal our lives truly are. I don’t know that our lives will ever really be normal again. And you know what? I am ok with that, if you know me at all, I am not very good at normal….
We are so glad to be back home! Thank you for all the thoughts and prayers.