Thursday, May 27, 2010


I have been awful at updating this blog! My apologies, I guess it is a good thing though since it means there isn’t much to tell.
Ezra went to clinic today, he is now on his 3rd cycle of maintenance. Ezra has had a pretty high ANC the last couple of times we went in. At his last appt. there was talk of increasing his chemo to 125% dosage.
But of course that all changed today when we got back his counts and his ANC was 237! He was at 1700 last Monday, just to give you an idea of how quickly it can change.
He received his chemo today in clinic and will still get his spinal tap tomorrow, but is off of his oral chemo until his counts go back up to at least 750. When he resumes his chemo he only be getting 50% dosage so they can make sure his counts don’t crash again. Its been quite sometime since he has been netropenic!
He has been handling his chemo like a champ, has little to no side effects from it so far.
In other news, sweet boy turned 3 over the weekend. We had an awesome party with friends and family.
Here is a video I made for Ezra for his birthday, I forgot to post it here too.


  1. Happy Birthday, Ezra!!!

    Glad his counts were lower again!

    9 days until my 1/2 marathon, I will be thinking of Ezra all the way!

  2. Happy Birthday Sweet Ezra! What a beautiful video...he is my hero! Its an amazing thing to see how strong and brave he is!

  3. Thank you for posting that beautiful video....Happy Birthday to your little man Ezra.
    I hope the count picks up .....quickly. XX

  4. Ezra is a darling boy. He is lucky to have such a kind, supportive mommy. I have a 3-year-old boy. I can't imagine what you're going through. I am sending all my loving and positive energies your and Ezra's way. ♥

  5. Ezra is such a cute and strong little boy! my thoughts go for him, you and all your family. Stay strong!
    waves from Paris, fr
    x Veee

  6. Thanks for the post. It can be really hard putting together an
    estate auction
    So make sure you work with professionals.

  7. Sweet ideas! Thanks for posting. When I was looking for new kitchen cabinets I went with these guys. Great prices and selection.

  8. For over 10 years I was an addict and needed heroine addiction help. When I got the help I needed, I could start living my life again.

  9. Thanks for the post. Technology can be hard to utilize but, if you need to find home automation software help then check out that link.

  10. Thanks for the helpful info. When I learned about getting a sober coach it changed my life.

  11. Being a legal malpractice insurance I found this article to be very informative. Help is out there and it’s easier to find if you know what you’re looking for.

  12. This article was great. I found the best dentist in Newport Beach and he’s got an excellent staff that will give you care and compassion.

  13. We all need help sometimes and when I needed bipolar disorder treatment. I knew there was somewhere I could turn.

  14. We all need help sometimes and when I needed bipolar disorder treatment. I knew there was somewhere I could turn.

  15. When I was looking for help with ptsd treatment California I didn’t know where to turn. I finally went with this center and they helped me save my life.

  16. When my business needed help with web copywriter we turned to these guys. They were quick and professional.

  17. The time that I was blind and needed to see the light was tough. I needed info on sober college. And finally found the one that worked for me.

  18. If you have troubles sleeping you should consider getting help for panic disorder treatment with care and compassion.

  19. Hi Ezra
    My name is Jenna, you are a brave, courageous fighter and an inspiration. You are a hero.
    I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
    I wrote this poem
    Each of us are Special
    Each of us different,
    No one is the same
    Each of are us are unique in our own way,
    Those of us who have challenges, we smile through our day.
    It doesen't matter what other's say
    we are special anyway.
    What is forty feet and sings? the school chior