Way To Go Sweet Boy!!!

Tomorrow Ezra will start the long term maintenance phase of his chemotherapy. When we first got the leukemia diagnosis it was so hard to envision ourselves getting to this point. Don’t get me wrong, long term maintenance isn’t going to be all rainbows and unicorns.

For the next 2.5 years he will receive chemo every day in the form of a pill, steroids 5 days a month, spinal taps every 12 weeks, and Vincristine once a month. We won’t be up at the clinic nearly as much, but the harsh reality won’t fade, with the daily chemo pill reminder.

Words really can’t express what Ezra has taught me in the last 6 months. He is the bravest person I know, and he is 2. I am honored to be his mother, and I would say I was proud of him, but that wouldn’t do it justice. It is beyond pride. So instead I will leave you with a little video I have made with clips from the last few months.

I apologize, the quality isn’t the best, it was taken with my point and shoot. But you will get the gist of it, and maybe you will see what makes him so special too.

I love you sweet boy, keep kicking cancer’s ass!!!

Week Delay

Ezra did not make counts yesterday, his ANC was 450. So we go back next week to retest his blood, and hopefully at that point he will be able to start long term maintenance.

Goodbye Delayed Intensification!

Today was Ezra’s last in clinic appointment for Delayed Intensification. He has one more pill left over the weekend and then he is done with that phase of chemotherapy! Yeah!

So to celebrate Anthony took the boys out to fly a kite. They flew it for about 15 minutes before it “flew” away.

We go back on Tuesday to test his blood, to make sure he isn’t in need of a transfusion. So far the blood looks good, his ANC is 760.

Ezra will take a couple weeks off for his counts to recover.  He is scheduled to begin Long Term Maintenance on December 3rd.

I asked for a copy of his next phase and on the bottom of it they had hand written in his “end of treatment” date, 7/21/2012.

While that date is awfully daunting, that is the first time I have ever even seen it. And its by no means written in stone, it was just nice to have a reminder that this chemo will end someday.