Free at last, Free at last

Little man is free at  last. We finally got to take Ezra home today, after a 19 day stay in the hospital.  It was so exciting, it was almost as exciting as taking him home as a newborn.

He is so happy to be home, look at how calm his eyes look.

Home Care came over today to teach me how to administer his antibiotics through his PICC line. We will be doing that for possibly 2 weeks, or however long it takes Ezra’s incision to heal. He gets antibiotics 4 times a day.

Rowan really missed Ezra he was so sweet to him. He told me Ezra is all better. He wanted to sit close to Ezra, and even wanted to play with him.

More smiles, we got lots of smiles and giggles today. It is such a relief to have him home.

Rowan missed Ezra so much he even shared his Batman toys…….now that is love.

The Best News

No were not going home from the hospital.

Even though we are still stuck up at the hospital, we got the best news today.

Ezra’s cancer is in remission….deep remission! That is what Ezra’s Dr. called it, I guess there are different levels of remission, deep remission is excellent!

So Ezra has the cancer’s butt kicked, now if he could only kick this infection. Sounds like Monday or Tuesday now that we will get to go home. We will still have to give him antibiotics at home , and pack his incision wound, which is no easy feat.

We don’t care, we will do whatever it takes just to take him home.

He has been off the steroids now since Thursday. I got a handful of smiles today, and even some conversation. It was more than I have gotten in 28 days! Its nice to see glimmers of the former Ezra in there, I was worried I would never see him again.

For now we are trying not to dwell on the fact that we are still in the hospital, and have moron nurses.

We are reveling in glee over the remission news instead.

Update

Well we won’t be going home tomorrow. Ezra’s white blood cell count is really high right now. Which you would think would be great news….not so much.

A few things can be causing his high white blood cells, it can be from the steroids, or the viral cold he seems to have caught, or it could mean he is still fighting this infection.

Since today marked the last day of induction and steroids (hooray!) they are going to wait and see if his WBC’s go down. They are also going to keep giving him antibiotics as a precaution. So it looks like we will be staying at least till Monday, so they can closely monitor him.

In good news, Ezra had a bone marrow aspiration, and spinal tap (with chemo) today. The oncologist said he took a look at the bone marrow and did not see any cancer cells, he suspects Ezra is in remission, we will get official news in a few days.

I am completely spent, physically, emotionally, and mentally. Hearing that we were going to be in the hospital even longer was really upsetting. This will put us at about a months time in the hospital. Every aspect of all our lives is suffering. I just want my sweet baby to come home.