Saturday, September 19, 2009

Friday

Yesterday I took Ezra to clinic to have a echocardiogram done, and labs drawn. He has to have an echocardiogram done because the Doxorubicin can cause thinning of the left ventricle of the heart, so they make sure his heart looks good from the get go.

That test went well, the cardiologist gave his heart the thumbs up, to start Delayed Intensification (DI).

However the lab work wasn’t great. His ANC needs to be at least at 750 to start DI, his was at 488. He is still on the schedule to start DI on Monday, we were just told to come back in Monday morning to do another CBC to see if he could start as planned that afternoon. So were hoping his counts come up enough so we can.

I also talked at length with the PA about keeping Rowan in school or taking him out during this phase. He seemed to think it was more of my call to make, and that if Rowan got sick they could just both wear masks at home, which made me laugh out loud…like that would happen!

So I then emailed Ezra’s actual Dr. to ask his opinion, and his response was simple, he said if it was an option to keep Rowan home during this phase to do so, he said it is going to be a bad flu season all around, and keeping Rowan home would probably keep Ezra safer. So sounds like we will be pulling Ro out of school for the next 2-3 months, not a big deal in the grand scheme of things, but I know Ro will miss school, he is really loving going.

So that is were we are, I will update more on Monday.

6 comments:

  1. I will pray that his number get higher by Monday. It's too bad he can't go to school but you have to do what is best for him.

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  2. Praying for higher numbers!! Hang in there and stay strong!! Fight Ezra right!

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  3. I hope Ezra’s number's get higher by Monday.

    As for rowan and school i would ask the school what sort of activities he does through out the day and then do some of them with him. Like if they do finger painting and stuff like that...

    Prayers are with you and your family!

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  4. Ezra is going to PASS Isa.. Ha... If he starts his DI on Monday, he will be in interim maintenance before January!

    Go Ez.....

    I'd keep him home. No questions asked. Even if you scheduled a "home school" situation that he could count on then maybe some of that school excitement could be channeled.

    The Mailbox has some fun ideas, even though it's for a bunchof kids.

    Hang in there!

    P.

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  5. I like everyone's ideas of emulating Rowan's preschool curriculum/schedule at home.

    Still in my thoughts...

    Peace, love and happiness,
    ~Jo
    "Diary Of A Sad Housewife"

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